The Agony Shelf
Here at Touretteshero we have what we call the ‘Ideas Shelf’. It’s an imaginary shelf and we put ideas for future projects, events or services on it. These ideas are then ready to be taken off the...
View ArticleSad Dave Day
It’s Friday evening and I’m exhausted and sad. Ines, my support worker, is changing my sheets in the other room, Gogglebox is on in the background, and I’m fighting back tears, and have been all...
View ArticleLight, Laughter, Life - Celebrating David
In January I wrote with shock and deep sadness about the loss of our colleague David to COVID-19. I shared some of the many things I’d learned from him, a man whose energy and passion were immense and...
View ArticleNeurological Solidarity
I’ve had a new tic for the last few weeks. It’s frequent and consistent and leading to lots of conversations, some intense, some interesting, and some challenging. This new tic is: “Long live...
View ArticleLoving Liz
Content Warning: Description of death and hate crimes Fifteen years ago when I tentatively started writing this blog, unsure of what I had to say or how I wanted to say it, there were a handful of...
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